Family Day a Great Success!

Lullymore Train RideWhat a wonderful day in Lullymore Heritage & Discovery Park! Such a beautiful place! So much to see and do, and plenty of reasons to come back another day. And such a beautiful day weatherwise.

In the midst of the Bog of Allen, Lullymore is a treasure that gave great joy to the 80 children and 63 adults that attended our fourth annual family day. Families started arriving from 10.30am, from Dublin, Galway, Waterford, Monaghan, Kildare, to name just a few of the represented counties.

SEE Photos of the day

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Family Activity Day, June 2008

Venue: Lullymore Heritage Park, advice near Rathangan, Co. Kildare.

BOOK NOW AND LOOK FORWARD TO
ANOTHER WONDERFUL FAMILY DAY OUT!
*BOOKING FORM BELOW* [Note: Deadline Now Passed, Form Removed. 13 Jun]

The Cleft Lip & Palate Association of Ireland is delighted to announce that its fourth Family Fun Day will be held on Saturday 14th June. The family day is for anybody that has been affected by cleft lip and / or palate and their families. It’s an opportunity to meet, swap stories and mostly have fun!

Lullymore Heritage Park

Mark this Date: Saturday 14th June 2008, 10:30 am to 4:00 pm

Time until the BIG EVENT:

This year we are planning to spend a day in the lovely Lullymore Heritage Park. Lullymore has something for everybody, walks, petting farm, outdoor play areas, crazy golf, indoor play, nature tours, afternoon entertainment and of course the Lullymore train. So pack a picnic or enjoy Lullymore’s café. We look forward to seeing you for another great family day…. hail or shine!

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Next Committee Meeting – 13th May

Venue: Banker’s Club, Stephen Street Upper, Dublin 8.

The next committee meeting will take place on Tuesday, 13th May, at 8.15pm (see map below for location).

Fast Approaching!
Our next main event is our Family Day this coming June (details imminent). This is our fourth annual Family Day, and after the success of our previous days out (see report on last summer’s), we aim to surpass even those! If you feel you could help in the delivery of our Family Day, or if you feel you could help out the Association in any other way, we would love to have you on board! All you have to do is get in touch with me, Georgina Wade, at Tel. 087 1319803 or by e-mail.
Georgina Wade, Cathaoirleach

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Website Problems

We wish to apologise for the interruptions to the website over the past few days – we have been experiencing technical difficulties, order so please bear with us while we rectify matters.

This occurrence has necessitated some changes to the site, most visibly a new design consequent on an upgrade. Full functionality and any missing content will be restored as soon as possible.

We do apologies for any inconvenience,
Website Administrator

UPDATE (26 April): Newsletter and leaflet downloads are now available again.
UPDATE (30 April): Galleries gradually making their re-appearance.

The Women’s Mini Marathon – Fundraising Opportunity!

The financial mainstay of the organisation is due to take place on Bank Holiday Monday, 2nd June 2008. It is of course the 2008 FLORA WOMEN’S MINI MARATHON. The Association is looking for participants to raise funds.

Sponsorship cards and t-shirts can be arranged by contacting Anne Gilsenan at 087 1319803 or annegilsenan@cleft.ie.

The Women's Mini MarathonIn the meantime we would like to let you know that participants must enter either on the official Entry Form which appears in the Evening Herald every Thursday and Saturday or online at www.florawomensminimarathon.ie by the closing date.

Closing Date: 22nd April 2008 or when maximum number of entries is reached.

Happy training people!

The Dublin Cleft Centre Conference

“Cleft Lip and Palate: The Journey of Care from Birth to Adulthood”

Venue: Hilton Dublin Hotel, cheap Charlemont Place, Dublin 2 (location map below)

The aim of the conference is to provide an overview of the journey of care of a baby born with Cleft Lip & Palate from birth to adulthood.  (Access Registration Form below)

This conference is suitable for Neonatologists, Paediatricians, Obstetricians,Surgical Trainees, Speech & Language Therapists, Orthodontists, Dentists, Nurses, P.H.N. & Midwives, General Practitioners and other interested Health Care Professionals.

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Information Evening, Feb’08 – A Report

Listen to this post, see belowTalk from Tanya Knadjian , Changing Faces

Tanya Knadjian from Changing FacesWe had a very successful Information Evening (Tue 26th Feb), with over 40 people in attendance, and the talk by Tanya Knadjian from Changing Faces was very well received! Tanya gave us invaluable advice on how our children born with cleft can cope with difference in their school and play environments. Tanya engaged very well with the audience, and her advice was hugely practical and enlightening. Many thanks to Tanya and Changing Faces!

Visit our Photo Gallery

Maternity Pack Launch

Dr Michael Robson, Master of the National Maternity Hospital, who launched our Maternity pack, had very positive words to say about the Pack and the contribution of the Association. 
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Spring 2008 Newsletter Available!

Listen to this post, see belowThe Spring 2008 Newlsetter is now available to download.

In this edition we cover events, need for funds, news and our usual Waiting Room Humour (yes, more of those jokes!)  We are particularly glad to feature the next part of Sean O Donohue’s story. Sean’s story should be encouraging for anybody thinking of going back to complete treatment.  We are also glad to publish our first hospital story from one of our young readers Cormac. Even though treatments differ we think that our young readers will enjoy comparing notes on hospital stays!  We would like to say a big thank you to Sean & Cormac.

Topics

Maternity Pack Launch – Guest Speaker from Changing Faces – Family Day Update – FUND RAISING: 2008 Mini Marathon – New Committee Member Needed – Research Update – New Children’s Hospital – Operation Smile Ireland, Largest Ever Effort – Web site: Did You Know? – Sean O Donoghue’s Story  – WHEN I WAS IN HOSPITAL, By Cormac (Aged 9) – Humour Column

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Next Committee Meeting – 8th April

Venue: Banker’s Club, Stephen Street Upper, Dublin 8.

The next committee meeting will take place on Tuesday, 8th April, at 8.15pm (see map below for location).

Want to help out?
Our next main event is our Family Day this coming June. This is our fourth annual Family Day, and after the success of our previous days out (see report on last summer’s), we aim to surpass even those! If you feel you could help in the delivery of our Family Day, or if you feel you could help out the Association in any other way, we would love to have you on board! All you have to do is get in touch with me, Georgina Wade, at Tel. 087 1319803 or by e-mail.
Georgina Wade, Cathaoirleach

Future Committee Meetings: 13th May.
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Operation Smile Ireland – Largest Ever Effort

Listen to this post, see belowIn November 2007, 23 Irish medical volunteers went to Ethiopia, Kenya and Morocco.  Between them they treated 250 patients in a two-week period. Co-ordinator Anne McGillivary was based in Jimma, Ethiopia, along with Mr. David Orr and Triona Sweeney.  The conditions in Jimma were particularly challenging but the team managed to screen 157 patients and perform 127 surgeries.  Patients’ ages ranged from 3 mths to 68 years!