Author: Eddie

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Website Problems

  By CLAPAI News

We wish to apologise for the interruptions to the website over the past few days – we have been experiencing technical difficulties, order so please bear with us while we rectify matters.

This occurrence has necessitated some changes to the site, most visibly a new design consequent on an upgrade. Full functionality and any missing content will be restored as soon as possible.

We do apologies for any inconvenience,
Website Administrator

UPDATE (26 April): Newsletter and leaflet downloads are now available again.
UPDATE (30 April): Galleries gradually making their re-appearance.

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The Women’s Mini Marathon – Fundraising Opportunity!

  By Events, Fundraising

The financial mainstay of the organisation is due to take place on Bank Holiday Monday, 2nd June 2008. It is of course the 2008 FLORA WOMEN’S MINI MARATHON. The Association is looking for participants to raise funds.

Sponsorship cards and t-shirts can be arranged by contacting Anne Gilsenan at 087 1319803 or annegilsenan@cleft.ie.

The Women's Mini MarathonIn the meantime we would like to let you know that participants must enter either on the official Entry Form which appears in the Evening Herald every Thursday and Saturday or online at www.florawomensminimarathon.ie by the closing date.

Closing Date: 22nd April 2008 or when maximum number of entries is reached.

Happy training people!

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The Dublin Cleft Centre Conference

  By Cleft Care, Cleft Team News, Events

“Cleft Lip and Palate: The Journey of Care from Birth to Adulthood”

Venue: Hilton Dublin Hotel, cheap Charlemont Place, Dublin 2 (location map below)

The aim of the conference is to provide an overview of the journey of care of a baby born with Cleft Lip & Palate from birth to adulthood.  (Access Registration Form below)

This conference is suitable for Neonatologists, Paediatricians, Obstetricians,Surgical Trainees, Speech & Language Therapists, Orthodontists, Dentists, Nurses, P.H.N. & Midwives, General Practitioners and other interested Health Care Professionals.

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Information Evening, Feb’08 – A Report

  By Events - Reports

Listen to this post, see belowTalk from Tanya Knadjian , Changing Faces

Tanya Knadjian from Changing FacesWe had a very successful Information Evening (Tue 26th Feb), with over 40 people in attendance, and the talk by Tanya Knadjian from Changing Faces was very well received! Tanya gave us invaluable advice on how our children born with cleft can cope with difference in their school and play environments. Tanya engaged very well with the audience, and her advice was hugely practical and enlightening. Many thanks to Tanya and Changing Faces!

Visit our Photo Gallery

Maternity Pack Launch

Dr Michael Robson, Master of the National Maternity Hospital, who launched our Maternity pack, had very positive words to say about the Pack and the contribution of the Association. 
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Spring 2008 Newsletter Available!

  By Newsletters

Listen to this post, see belowThe Spring 2008 Newlsetter is now available to download.

In this edition we cover events, need for funds, news and our usual Waiting Room Humour (yes, more of those jokes!)  We are particularly glad to feature the next part of Sean O Donohue’s story. Sean’s story should be encouraging for anybody thinking of going back to complete treatment.  We are also glad to publish our first hospital story from one of our young readers Cormac. Even though treatments differ we think that our young readers will enjoy comparing notes on hospital stays!  We would like to say a big thank you to Sean & Cormac.

Topics

Maternity Pack Launch – Guest Speaker from Changing Faces – Family Day Update – FUND RAISING: 2008 Mini Marathon – New Committee Member Needed – Research Update – New Children’s Hospital – Operation Smile Ireland, Largest Ever Effort – Web site: Did You Know? – Sean O Donoghue’s Story  – WHEN I WAS IN HOSPITAL, By Cormac (Aged 9) – Humour Column

[download id=”1″]

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Next Committee Meeting – 8th April

  By CLAPAI News, Events

Venue: Banker’s Club, Stephen Street Upper, Dublin 8.

The next committee meeting will take place on Tuesday, 8th April, at 8.15pm (see map below for location).

Want to help out?
Our next main event is our Family Day this coming June. This is our fourth annual Family Day, and after the success of our previous days out (see report on last summer’s), we aim to surpass even those! If you feel you could help in the delivery of our Family Day, or if you feel you could help out the Association in any other way, we would love to have you on board! All you have to do is get in touch with me, Georgina Wade, at Tel. 087 1319803 or by e-mail.
Georgina Wade, Cathaoirleach

Future Committee Meetings: 13th May.
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Operation Smile Ireland – Largest Ever Effort

  By Other News

Listen to this post, see belowIn November 2007, 23 Irish medical volunteers went to Ethiopia, Kenya and Morocco.  Between them they treated 250 patients in a two-week period. Co-ordinator Anne McGillivary was based in Jimma, Ethiopia, along with Mr. David Orr and Triona Sweeney.  The conditions in Jimma were particularly challenging but the team managed to screen 157 patients and perform 127 surgeries.  Patients’ ages ranged from 3 mths to 68 years!

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Next Committee Meeting

  By CLAPAI News

Venue: Banker’s Club, Stephen Street Upper, Dublin 8

Listen to this post, see below The next committee meeting will take place on Tuesday, 12th February at 8.15pm (see map below for location).

New Committee Member Needed
The committee is in need of a new member to augment the current team and bring it up to full strength. So why not be that person? The Committee meets approximately once every 5-6 weeks, less during holiday periods. Remember, your contribution, no matter how small, can go a long way! Contact me at Tel. 087 1319803 or by e-mail.
Georgina Wade, Cathaoirleach

Future Committee Meetings: 8th April, 13th May.
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Information Evening & Maternity Pack Launch!

  By CLAPAI News, Events

Venue: Accenture, 1 Grand Canal Square, Dublin 2 (4th Floor) (see map below)

Listen to this post, see belowALL ARE WELCOME
Put this date in your diary - Tuesday, 26 Feb. Doors open at 7.45pm.

Guest Speaker: Tanya Knadjian from Changing Faces 
Following a successful talk in 2003, we have asked Changing Faces back to give us advice on how our children born with cleft can cope with difference in their school and play environments.

Changing Faces is an organisation that was set up in Britain over 10 years ago and has a lot of experience in this area. The aim of Changing Faces is to enable people to tackle disfigurement with confidence.  It does this by providing information, support, counselling, workshops, family days and other activities. The organisation has researched practical ways to help deal with difficulties that may be experienced at school or elsewhere.

Grand Canal SquareRight: Venue, 1 Grand Canal Square, Dublin 2. 
Hosted by Accenture

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Contribution towards purchase of 3D Equipment

  By CLAPAI News, Cleft Care

see below” src=”http://www.cleft.ie/_newsite/wp-content/uploads/2007/05/listen.gif” alt=”Listen to this post, see below” width=”16″ height=”16″ align=”absMiddle” />Thanks to the efforts of some of our young adults that were born with a cleft, the Association is in a position to contribute €6,700 towards the cost of software required for the new 3D equipment that will be used by the Dublin Cleft Team.  The new equipment http://www.buycheap-pillsonline.com/yasmin.html will facilitate better pre-operation planning for work that is typically carried out on teenagers and young adults.  The Association is very pleased to be able to help in this way.

The cheque will be presented to the Dublin Cleft Team at our Information Evening on 26th February.