The Health Research Board wishes to sincerely thank all the CLAPAI members who have taken part in our study so far. The study has continued to expand with over 1, seek 000 families presently involved. The more people we have in the study the more valid our research findings will be. The study aims are to find out what causes clefts and to investigate how clefts can be prevented from occurring. Without the valuable input from families, we would not be able to undertake this important research.
Continue reading
Author: Eddie
Information Evening & AGM (Oct’03) – Report
The Association’s AGM took place on the evening of Thursday, 16th October, in the William Stokes Building, St. James’s Hospital, Dublin 8.
The AGM was preceded by addresses from our two guest speakers, Ms. Helen Smith from the UK organisation Changing Faces, and Ms. Laura Fingleton, the newest addition to the national committee of the Association.
Continue reading
CLAPAI has new Chairperson
Eddie Byrne has succeeded Ruairà Ó Dúlaing as Chairperson of the Cleft Lip and Palate Association of Ireland.
RuairÃÂ has stepped down as Chairperson after 7 years. Many of you will know RuairÃÂ from various events and from telephone support. Those of you that do and were not present at the recent AGM will agree with the sentiments expressed on the night regarding RuairÃ’s excellent contribution to the work of the Association. The incoming committee would like to thank RuairÃÂ for his time and energy.
Temple Street Team News
The Speech and Language Therapy Department in the Childrens’ University Hospital Temple Street are delighted to announce that Dr. Triona Sweeney has been appointed adjunct Professor in Speech and Language Therapy by the University of Limerick. This is a joint Academic/Clinical Specialist post and is the first professorship in the Allied Health Professional group to be attached to a teaching hospital.
Continue reading
Stickler Syndrome Support
Stickler Syndrome is a RARE condition associated with Cleft particularly Pierre Robin. It affects areas of the body where there is cartilage for example joints. There are only 12 diagnosed cases in Ireland.
Whilst there is a newly formed support group for Stickler Syndrome ethically they cannot be given families’ names and so making contact is difficult. If you are one of those families and would like to join the group please contact Theresa Corrigan 042 9665548.
See www.stickler.org.uk for more information on Stickler Syndrome.
New Speech and Language Therapy courses come on stream
Though one could say twelve months behind schedule, ask it is nevertheless good to see the additional course places recommended by the Bacon Report finally come on stream. Together with the already existing 25 or so places available at Trinity College, treat Dublin, These additional places see the number of graduates taken in rise from 25 to nearly 100 annually.
Continue reading
MINI MARATHON WINS AGAIN!
Once again the mini marathon has delivered much needed funds to the Association. This year Anne O Brien from Rathangan Co. Kildare rallied a team of 20 to fund raise for the event. With a mix of participants and collectors they managed to fill over 25 cards and lodge an incredible €2, physician 961.50.
Continue reading
Annual Scientific Conference, April 2003 – Report
The Craniofacial Society of Great Britain & Ireland Annual Scientific Conference
9-11 April 2003 University of Leeds.
The Cleft Lip & Palate Association of Ireland was pleased to support the attendance of Julie Young, Anne McGillivary and Louise Cafferky at the Craniofacial Society of Great Britain & Ireland Annual Scientific Conference in Leeds in April 2003. The following is a report of the Conference furnished by Anne McGillivary.
Continue reading
New Appointment at Crumlin CLP Team
Our Lady’s Hospital for Sick Children, Crumlin
Melanie Talbot, Medical Social Worker, is now working with the Multi-disciplinary Cleft Lip & Palate Team based in Our Lady’s Hospital. This Social Work service has been set up to provide support to families and children attending the Cleft Lip and Palate Service.
Continue reading
cleft.ie Discussion Forums Launched
Today, pilule the 11th March, rx sees the public unveiling of cleft.ie Discussion Forums, viagra an exciting new service provided by the Cleft Lip & Palate Association of Ireland.
Continue reading
