Author: Eddie

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Flora Women’s Mini Marathon 2010 – Fundraising

  By Events, Fundraising

Mini-marathon times is fast approaching! The Association relies heavily on donations and sponsorship from the mini-marathon, viagra which finances the majority of our activities.

Flora Mini-MarathonThe Flora Women’s 10k Mini-marathon is on Bank Holiday Monday, price 7th June.

As ever, pilule we need YOUR help. Sponsorship cards and T-shirts can be arranged by contacting Anne Gilsenan at 087 1319803, or annegilsenan@cleft.ie. Anne requires name, home address, (email address would be great too), home number, mobile number and number of cards and t-shirts required.

The first Entry Form is in the Evening Herald on Wednesday 3rd March 2010, or register online at www.florawomensminimarathon.ie.
Closing Date: 27th April 2010, or when maximum number of entries is reached.
Age Limit: Participants must be at least 14 on Mini Marathon Day.

Good Luck Ladies!

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Cleft Conference Photos

  By Other News

The Dublin Cleft Centre Conference was held on the 13th March, nurse 2008.  The theme of the conference was “Cleft Lip and Palate: The Journey of Care from Birth to Adulthood”.

Below: Cathaoirleach Georgina Wade with Professor Brendan Drumm, CEO of the HSE.
Georgina Wade and Professor Brendan Drumm

The conference was held in the Hilton Dublin Hotel, Charlemont Place, Dublin 2. The aim of the conference was to provide an overview of the journey of care of a baby born with Cleft Lip and Palate from birth to adulthood.

More photos from the conference can be viewed on our photo gallery.

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Annual General Meeting and Information Evening

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland is holding its Annual General Meeting and an Information Evening on Thursday, 15th April, 2010, at 8pm. Doors open from 7:15pm.

Venue: The Louis Fitzgerald Hotel (near Joel’s), Newland’s Cross, Naas Road, Dublin 22. (Location Map below).

The Information Evening theme is “SPEECH AND HEARING“.

Following our successful event last year, ‘Dental Care All the Way’, this year we are concentrating on Speech and Hearing. We will be looking at each area separately and where they overlap. We are delighted to have three excellent speakers for the event.

  • Nicole Prenderville, Senior Speech and Language Therapist, Our Lady’s Children’s Hospital,  Crumlin.
  • Rob Wormald, Senior Ear Nose and Throat Registrar, Children’s University Hospital, Temple Street.
  • Julianne Gillen, Community Resource and Access Officer, DeafHear.ie

The information evening is aimed at parents, but will also be of interest to adults born with cleft or medical personnel working in this area.  Carers or close relations are also welcome.  While admission is free, we would appreciate an email, text or call in advance, so that we have an idea of likely numbers attending.

Location Map:
View Louis Fitzgerald Hotel in a larger map

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Urgently Required – New Committee Members

  By CLAPAI News

We urgently need two new committee members to cover for a vacancy and for new projects that we want to undertake.

The committee meets 10 times a year in the Bankers Club in Dublin 2.  Meetings last from 8:15pm to 10:30pm approximately.  We divide work to suit our respective talents and interests.  We always try to maintain a balance in keeping work manageable for volunteers and doing all the things we want to do to make life better for families.  If you can help in some way please phone 087 131 9803 or email info@cleft.ie

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CLP Resource Pack for Speech and Language Therapists

  By Other News

The “Cleft Lip and Palate and Palatal Anomalies SIG” are a Special Interest Group that have recently produced a resource pack for Speech and Language Therapists working with children with Cleft Lip and Palate in different clinical settings.

This resource contains very specific information ranging from the care pathway to therapy that can be conducted with children from earliest stage of babble stimulation right through to specific techniques to articulation therapy as well as instrumental assessment techniques that are available.

Continue reading

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Information Leaflets Update

  By CLAPAI News

We have recently secured funding from the Lotto that will part pay for the reprint of our 10 leaflet series.  We are reviewing the series during the month of October and would appreciate feedback from you.

Send your comments to info@cleft.ie.

We are also working on producing supplemental leaflet that will address specific procedures that occur later in treatment e.g Braces, viagra dosage Bone Graft. This will be a slower process as we will need to work on content, cost ensure quality and accuracy with our medical colleagues and of course go to print.  If you would be interested in contributing to this process please contact us by e-mail.

Many thanks,
Georgina Wade

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Rathangan Runners do it again!

  By Fundraising

Rathangan RunnersThe Rathangan Runners do it again! Another great fund raising event from Anne O Brien and the team. Without them and all of our mini-marathon runners we would indeed be lost.

L-R: Sharon Melia, unhealthy Natasha Gilligan, Anne O’Brien, Liz Gilligan and Trasa O`Brien.

 

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What a Day!

  By Events - Reports, Uncategorized

medicine Family Day, 13 June 2009″ src=”http://www.cleft.ie/_newsite/wp-content/uploads/2009/06/dsc_0698-300×156.jpg” alt=”Group Photo, Family Day, 13 June 2009″ width=”300″ height=”156″ />Our Family Day was such a success! And what a beautiful sunny Saturday! A great turn out, our biggest to date, and everyone had a ball. Some 48 families or more, and over 200 in attendance between adults and children.

Right: Group Photo taken in Dublin Zoo. Click image to view large size (2019px x 1051px, 790kb).

Thank you to all who came, we expect that there were many tired children on Saturday night! And even more tired adults! And thank you too to the Zoo staff and to the army for hosting and feeding us in McKee Barracks.  This is the third year that the army have been involved with out Family Day, and they have been great!

See Photos of the Big Day!

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Win €10,000 for Our Charity!

  By Fundraising

Visit www.lyonscharitygiveaway.ie and find out how to nominate our charity to win €10, recipe 000.

To enter, viagra 60mg Send 1 token from any box of Lyons tea naming the “Cleft Lip and Palate Association of Ireland” as your favourite charity, your name address and telephone number to:
Lyons Charity Promotion, PO BOX 10850, Dublin 2.

Closing date for entries is 31st August 2009.

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Study Morning on Speech and Language Difficulties – 22q11 Ireland

  By Events

Venue: The School of Nursing and Midwifery Studies, Trinity College, 24 D’Olier Street, Dublin.

22q11 Ireland22q11 Ireland invites you to a Study Morning on Speech and Language difficulties specific to 22q11.2 Deletion / VCFS / DiGeorge syndrome.

Our speakers on the day are USA VCFS experts:

Speech Pathologist and Outomes Studies Coordinator: Eileen Marrinan, M.S., M.P.H.
A true expert in the field of speech disorders associated with cleft palate in general and VCFS specifically, she has been the primary resource for guiding the treatment of speech disorders in VCFS and managing care of patients http://onlinepharmacies247.com/paxil_generic.html through the Distance Care program. She is also an expert at multiview videofluoroscopy, a state-of-the-art diagnostic procedure first developed at Upstate Medical University.

Eileen will speak on “The Nature and Treatment of Speech Disorders Associated with Velo-Cardio-Facial Syndrome”.

Doctor Sherard Tatum.
Doctor Tatum has dedicated his career to the care and research of cleft and craniofacial disorders. He is Board Certified in both Otolaryngology and Facial Plastic and Reconstructive Surgery.

Scott will speak on “Surgical Managment of Velopharyngeal Insufficiency in Velo-Cardio-Facial Syndrome”.

RSVP to: twenty.two.q@gmail.com. Telephone: 087 7412856.