Category: CLAPAI News

The Cleft Lip and Palate Association of Ireland AGM 2024

Link

  By CLAPAI News, Events

The Association’s formal AGM 2024 AGM will take place ion Monday 9th December and will be followed by an Open Discussion on Hospital Waiting Lists.

Venue – Louis Fitzgerald Hotel, 1A Naas Road D22 X5N7 Newlands Cross  – & Zoom

Opening Address & AGM 2024, 7:30pm

  • Opening address
  • Company AGM
  • CLAPAI update
  • A.O.B.

Open Discussion on Hospital Waiting Lists, 8pm 

We are aware that services in hospital’s have not fully recovered for children or adults since COVID. Despite best efforts, waiting lists, cancelled appointments & cancelled surgeries are happening. We want to hear from families & adults in the service so we can see what we can do together. 

Book on Eventbrite 

Please search Eventbrite for The Cleft Lip and Palate Association of Ireland AGM 2024 or follow the link Eventbrite CLAPAI AGM 2024 Booking


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Bottles & BREXIT

  By CLAPAI News, Cleft Care, Hospital News

CLAPAI will be receiving a delivery of 500 bottles on 16th December 2020.  It is planned to make Cleft Bottle Contingency packs available to maternity hospitals. Email info@cleft.ie for further information. 


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CLAPAI Family Day 2019

  By CLAPAI News, Events

The Cleft Lip & Palate Association of Ireland is delighted to announce this year we are returning to the wonderful Causey Farm. We have an action packed day planned, from the petting farm to bog jumping.

The Family day is for children and young adults who were born with cleft. It’s for parents, brothers, sisters, babies and grandparents too. Grown ups born with cleft might like to bring their own family to the event, it’s never too late to join in.

It is a time to enjoy activities together, to chat over tea & coffee, to enjoy the annual raffle and above all to meet other families.

Meet at 10:00am and finish around 4:00pm on Saturday June 15 2019 at Causey Farm, Girley, Fordstown, Co. Meath.

Email info@cleft.ie if you have any queries

We look forward to seeing you for another great family day.

For more information or to book click here:
https://www.eventbrite.com/e/cleft-lip-and-palate-association-family-day-2019-registration-61384017248?ref=enivte001&invite=MTY0NDA4NjgvZGFycmFuYnJlbm5hbkBnbWFpbC5jb20vMA%3D%3D%0A&utm_source=eb_email&utm_medium=email&utm_campaign=invitemodernv2&utm_term=eventpage Family Activity Day 2019 Booking Form V2.0


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CLAPAI Information Evening 2019

  By CLAPAI News, Events, Good to Know

The Cleft Lip and Palate Association of Ireland is delighted to announce our 2019 Information Evening with themes of Speech & Hearing.

The topics titles are:

‘Let’s get Talking’ Early Intervention in Children with Cleft Palate: Roberta Fleming Speech & Language Therapist, Cleft Team, Temple Street Hospital.

Hearing and Cleft Palate: Jen Sim, Clinical Audiologist, Dublin Audiology, 12 Berkely Road, Dublin 7.

Speech at Home: An update on Parent Led Articulation Therapy.

Followed by

Tea & Coffee and Meeting

The Information Evening is an ideal time to meet other families affected by cleft. Come along and enjoy a cup of tea with all of us.

Where: Clayton Hotel Liffey Valley, Fonthill Road, Liffey Valley, D22 X4W6 Dublin 22

When: Wednesday, May 29, 2019 from 7:30 PM to 9:00 PM

For more information and to sign up:
https://www.eventbrite.com/e/cleft-lip-and-palate-association-information-evening-may-2019-registration-61605666206?ref=enivte001&invite=MTY0NjMwNDYvZGFycmFuYnJlbm5hbkBnbWFpbC5jb20vMA%3D%3D%0A&utm_source=eb_email&utm_medium=email&utm_campaign=invitemodernv2&utm_term=eventpage


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In loving memory of Anne McGillivary.

  By CLAPAI News, Cleft Team News

It is with deep regret that we learned of the sudden passing of Anne McGillivary, Temple Street Cleft Coordinator. Anne has helped countless families over many years. Her cheer, her work ethic, her vision and compassion will be missed by all who worked with her and all who met her through cleft services.

Anne had a long association with CLAPAI and in recent years was a valuable and dedicated member of our committee. We are sure that Anne’s influence will extend for generations. CLAPAI extends its condolences to Anne’s family, friends and colleagues.

Anne, we will miss you dearly, RIP.

https://rip.ie/death-notice/anne-mcgillivary-firhouse-dublin/361776


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Cleft Lip and Palate Association of Ireland Family Day 2018: 16th June 2018

  By CLAPAI News, Events

The Cleft Lip & Palate Association of Ireland is delighted to announce this year’s trip to a new venue, Carlingford Lough Activity Centre, Co. Louth on Saturday, 16th June 2018.

We have an action packed day planned, full of activity on land and at sea for all age groups.

The Family day is for children and young adults who were born with cleft. It’s for parents, brothers, sisters, babies and grandparents too.

It is a time to enjoy activities together, to chat over tea & coffee, to enjoy the annual raffle and above all to meet other families.

Meet at 9:30am and finish around 4:30pm.  You can book your place using the attached form or by clicking the link to Eventbrite:

Email info@cleft.ie if you have any queries.

We look forward to seeing you for another great family day!

Closing date for booking is Saturday 9th June 2018.

Kind regards

Georgina Wade (Chairperson)

On behalf of Committee 


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Calling adults attending cleft services at St James’ Hospital!

  By CLAPAI News, Cleft Care, Cleft Team News, Events

UPDATE- Due to the upcoming weather event in Dublin our information evening scheduled for  1 March has been postponed until 14 March 2018.

The Cleft Lip and Palate Association of Ireland (CLAPAI) is hosting an information evening for adults attending cleft services in St James’ Hospital on Thursday, 14 March 2018 at 19:30 in the Clayton Hotel near Liffey Valley Shopping Centre.

The focus for the evening will be on dental work and the experience of adults who have returned to the service or require the service.

Please RSVP on 0871319803 or info@cleft.ie.

Please note that admission is free and tea and coffee will be served.


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AGM & Information Evening 2017

  By CLAPAI News, Events, Good to Know

The Cleft Lip and Palate Association of Ireland AGM & Information Evening 2017

Thursday 30th November at 8pm, (Doors open from 7.30pm) Clarion Hotel Dublin, near Liffey Valley.

The themes this year are surgery and braces and our speakers are as follows:

1. A Parent’s Guide to Cleft Surgery by Mr David Orr, Consultant Cleft Surgeon, Our Lady’s Hospital, Crumlin & St James’ Hospital.

2. My Experience With Braces by Molly Wade, Lead Singer with The Enzymes.

These will be followed by our AGM, Tea/Coffee & General Chat.

The information evening is an ideal time to meet with other parents, adults born with Cleft and medical professionals. Please come along and enjoy a cup of tea/coffee with us all.

To help us plan r.s.v.p. to info@cleft.ie. Admission is free.

Thank you

The Committee


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CLAPAI Social Evening including First Aid for Toddlers

  By CLAPAI News, Cleft Team News, Events

CLAPAI is hosting an informal meeting on Tuesday 16th May in the Louis Fitzgerald Hotel, on the Naas Road. (Link attached. below).

The doors will be open at 7:30 with tea and coffee served. At 8pm we are glad to have parent and committee member Aine Doyle give us a session on ‘First Aid for Toddlers’, Aine is a qualified Emergency First Responder as well as a qualified life guard. Her many qualifications include CFR,CFRA,CFRI,OPF,PFA &EFR. Responding to emergencies is something we think every parent will want to know more about.

http://www.louisfitzgeraldhotel.com/location-and-directions.html

Our emergency response session will be followed by a Q&A discussion on common things that affect us as parents of child born with cleft. As a committee we can share our combined experiences but we also want to know where the pressure points are in the service currently.

If you can send any items of specific interest in advance please email info@cleft.ie.

There is no charge for the evening. All are welcome but please send us an email to help us with bookings.

Thanks
CLAPAI


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CLAPAI Family Day 2017 – Book Now

  By CLAPAI News, Cleft Team News, Events, Uncategorized

CLAPAI’s Family Day, our most anticipated day of the year, is back for 2017. It will be held from 10am – 4pm on Saturday 17 June at Bay Sports Athlone!

We have planned a fun, active day at this great water park facility for the kids. There is always a great social atmosphere for parents to meet and catch up. The facility has a special baby water park for those under 6.

Booking

For further details on change of clothes needed, cost of wetsuit hire or to book please contact us by twitter, Facebook or email.

 


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