Category: CLAPAI News

The Cleft Lip and Palate Association of Ireland Information Evening 2016

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland Information Evening 2016

Thursday 24th November at 8pm, (Doors open from 7:30), Clarion Hotel Dublin, near Liffey Valley.

Agenda:

8:00pm Welcome & Annual General Meeting

8:20pm “I found speaking pretty hard to do”, The impact of parents, teachers and speech therapists working together

Presented by Angie Dromgoole Mother, Audrey Byrne Teacher, Antonia Hussey SLT and facilitated by Roberta Fleming, Speech Language Therapist, Temple Street, CUH

8:50pm Dental Health getting the Best Results for Children Born with a Cleft

Presented by Dr Eleanor Mc Govern, Consultant Paediatric Dentist,Temple Street CUH

9:20pm Tea/Coffee & General Chat

Information evenings are a great way to meet people so please come along. To help us plan r.s.v.p. to info@cleft.ie. Admission is free.

information-evening-2016c


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Smile, it’s Autumn!

  By CLAPAI News, Fundraising

It is that wonderful time of year again when the world appreciates smiles, and smiles of all types. It is also the time of year when charities around the world that help people with facial differences come together to both campaign for the people they represent and also to fundraise.

We’d love you to send us in your photos and also to help us fundraise this year. We are partnering with Operation Smile, a charity that supports operations for children with clefts across the developing world.

We are encouraging local communities to help us out this October by having tea mornings, bakes sales at work or school, book clubs and any other idea you can think off to raise money for us and Operation Smile.

If you want to get in touch, or if you are interested in helping us out please contact clapai.info@gmail.com.


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Parent Led Articulation Therapy (PLAT) Update and Call for Volunteers.

  By CLAPAI News, Cleft Team News, Hospital News

The Parent Led Articulation Therapy (PLAT) project has been on-going for a number of months now and the research group so far is showing very promising results.

To get the best results possible for everyone we are encouraging new volunteers to get involved.

This two centre study is being run by Dr. Triona Sweeney, Trinity College Dublin and Dr. Debbie Sell, Great Ormond Street Hospital. Parents are encouraged to participate in this study as this will help us find out whether this novel new approach to speech therapy for children with cleft palate related speech problems is effective. Four parents who have already attended the training course were extremely positive about the programme. Following the home programme they said that “you feel like you are instrumental – taking some power yourself”, and how they realised that children “need a little bit every day, a weekly appointment is not enough”.

If you want further information about the project contact your cleft unit or Triona by phone at 085 1754614 or email platslt@icloud.com.


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Parent Led Articulation Therapy (PLAT) Update

  By CLAPAI News, Cleft Care, Cleft Team News, Uncategorized

Parent Led Articulation Therapy (PLAT) is an exciting new Speech & Language Therapy project which aims to find out if empowering parents by training them helps their child overcome their speech problems related to cleft palate.

This two centre study is being run by Dr. Triona Sweeney, Trinity College Dublin and Dr. Debbie Sell, Great Ormond Street Hospital. Parents are encouraged to participate in this study as this will help us find out whether this novel new approach to speech therapy for children http://www.ciprobuyonline.org with cleft palate related speech problems is effective. Four parents who have already attended the training course were extremely positive about the programme. Following the home programme they said that “you feel like you are instrumental – taking some power yourself”, and how they realised that children “need a little bit every day, a weekly appointment is not enough”.

If you want further information about the project contact your cleft unit or Triona by phone at 085 1754614 or email platslt@icloud.com.


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Facial Difference- How to Cope

  By CLAPAI News, Events, Uncategorized

CLAPAI’s next guest speaker evening will host Henrietta Spalding, Head Of Advocacy, Changing Faces for a discussion on facial difference and how to cope with these.

The event is free admission and will be held in the Centre for Development and Learning, St James’ Hospital at 8pm on 3rd February. Doors will open at 7.30pm and please email info@cleft.ie to register interest.


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CLAPAI Information evening and AGM

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland annual information evening and AGM will be held on Wednesday 25 November at 8pm in the Clarion Hotel Dublin, near Liffey Valley.

The guest speakers for the evening will be Mr Christoph Theopold, Consultant Cleft Surgeon, Temple Street and Dr Triona Sweeney, Adjunct Professor and Cleft Research Speech and Language Therapist.

All are welcome, admission is free and please contact us if you require further information.


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World Smile Day, 2nd October

  By CLAPAI News, Events, Fundraising
world-smile-day-launch

Rugby star Ian Madigan, troche CLAPAI representative Sean Haughey, Professor Triona Sweeney and Anne McGillivary from the Cleft team at Temple Street

Operation Smile and the Cleft Lip and Palate Association of Ireland are partnering to celebrate World Smile Day 2015 on Friday, 2nd October. We will be running several bucket collections around the country.

The confirmed Collection Points for October are… Continue reading


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Grafton Street Bucket Collection, 16/17 May

  By CLAPAI News, Fundraising

Volunteers Needed! Read on…

It has been a very busy time for the Association since the fire that destroyed our entire stock of support material in Store-It . We would like to extend a BIG ‘Thank You’ to so many for the support, encouragement and donations made to date.

We are making progress on both the fundraising score and the preliminary work regarding ordering more materials.

On that http://www.buyantibioticshere.com/buyaugmentin.html note, we have two days bucket collecting planned for Grafton Street and in that regard we need help.

Details:

Grafton Street Bucket Collection Saturday 16th & Sunday 17th May.
Working in two hour shifts we need 90+ volunteers
10am to Noon
Noon to 2pm
2pm to 4pm

If you or friends can help can you please email info@cleft.ie or text 087 1319803 or leave a message on our Facebook page.


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RTÉ Liveline Interview, 5th May 2015

  By CLAPAI News

Our Chair, Georgina Wade, was interviewed by Damien O’Reilly (standing in for Joe Duffy) on the Liveline Show on RTÉ Radio One on Tuesday, 5th May.  George spoke about the recent fire at the storage facility in Ballymount and the consequences for the Association and those we serve. She also spoke about the wider work of the Association and cleft lip and palate. George was followed briefly by Vicky who spoke highly of the support she has received from the Association.

We must extend our sincere thanks to RTÉ and the Liveline Programme for the coverage they afforded the Association in its time of need and the time given to us to speak about cleft lip and palate and the role of the Association in supporting parents and those born with the condition. You can listen to the interview here:

The Interview on the RTÉ website.


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Disaster Strikes… We Now Need Your Help!

  By CLAPAI News, Fundraising

Disaster struck the Association today when the the storage unit in Ballymount where we have all our maternity packs, leaflets, bottles and family day stuff was destroyed by fire… the cost and time it will take to replace our stock  is frightening.

We have to quickly raise funds to reprint and replace the lot so we can keep maternity hospitals stocked and parents supplied… please, please contribute if you can and help us replenish our stock.

To help, visit our  Donate page and contribute if you can, what you can. No sum is too small. And Thank You.

[Update, 1st May] Read about the Association’s loss in thejournal.ie.


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