Category: Cleft Team News

In loving memory of Anne McGillivary.

  By CLAPAI News, Cleft Team News

It is with deep regret that we learned of the sudden passing of Anne McGillivary, Temple Street Cleft Coordinator. Anne has helped countless families over many years. Her cheer, her work ethic, her vision and compassion will be missed by all who worked with her and all who met her through cleft services.

Anne had a long association with CLAPAI and in recent years was a valuable and dedicated member of our committee. We are sure that Anne’s influence will extend for generations. CLAPAI extends its condolences to Anne’s family, friends and colleagues.

Anne, we will miss you dearly, RIP.

https://rip.ie/death-notice/anne-mcgillivary-firhouse-dublin/361776


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Calling adults attending cleft services at St James’ Hospital!

  By CLAPAI News, Cleft Care, Cleft Team News, Events

UPDATE- Due to the upcoming weather event in Dublin our information evening scheduled for  1 March has been postponed until 14 March 2018.

The Cleft Lip and Palate Association of Ireland (CLAPAI) is hosting an information evening for adults attending cleft services in St James’ Hospital on Thursday, 14 March 2018 at 19:30 in the Clayton Hotel near Liffey Valley Shopping Centre.

The focus for the evening will be on dental work and the experience of adults who have returned to the service or require the service.

Please RSVP on 0871319803 or info@cleft.ie.

Please note that admission is free and tea and coffee will be served.


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CLAPAI Social Evening including First Aid for Toddlers

  By CLAPAI News, Cleft Team News, Events

CLAPAI is hosting an informal meeting on Tuesday 16th May in the Louis Fitzgerald Hotel, on the Naas Road. (Link attached. below).

The doors will be open at 7:30 with tea and coffee served. At 8pm we are glad to have parent and committee member Aine Doyle give us a session on ‘First Aid for Toddlers’, Aine is a qualified Emergency First Responder as well as a qualified life guard. Her many qualifications include CFR,CFRA,CFRI,OPF,PFA &EFR. Responding to emergencies is something we think every parent will want to know more about.

http://www.louisfitzgeraldhotel.com/location-and-directions.html

Our emergency response session will be followed by a Q&A discussion on common things that affect us as parents of child born with cleft. As a committee we can share our combined experiences but we also want to know where the pressure points are in the service currently.

If you can send any items of specific interest in advance please email info@cleft.ie.

There is no charge for the evening. All are welcome but please send us an email to help us with bookings.

Thanks
CLAPAI


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CLAPAI Family Day 2017 – Book Now

  By CLAPAI News, Cleft Team News, Events, Uncategorized

CLAPAI’s Family Day, our most anticipated day of the year, is back for 2017. It will be held from 10am – 4pm on Saturday 17 June at Bay Sports Athlone!

We have planned a fun, active day at this great water park facility for the kids. There is always a great social atmosphere for parents to meet and catch up. The facility has a special baby water park for those under 6.

Booking

For further details on change of clothes needed, cost of wetsuit hire or to book please contact us by twitter, Facebook or email.

 


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Parent Led Articulation Therapy (PLAT) Update and Call for Volunteers.

  By CLAPAI News, Cleft Team News, Hospital News

The Parent Led Articulation Therapy (PLAT) project has been on-going for a number of months now and the research group so far is showing very promising results.

To get the best results possible for everyone we are encouraging new volunteers to get involved.

This two centre study is being run by Dr. Triona Sweeney, Trinity College Dublin and Dr. Debbie Sell, Great Ormond Street Hospital. Parents are encouraged to participate in this study as this will help us find out whether this novel new approach to speech therapy for children with cleft palate related speech problems is effective. Four parents who have already attended the training course were extremely positive about the programme. Following the home programme they said that “you feel like you are instrumental – taking some power yourself”, and how they realised that children “need a little bit every day, a weekly appointment is not enough”.

If you want further information about the project contact your cleft unit or Triona by phone at 085 1754614 or email platslt@icloud.com.


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Parent Led Articulation Therapy (PLAT) Update

  By CLAPAI News, Cleft Care, Cleft Team News, Uncategorized

Parent Led Articulation Therapy (PLAT) is an exciting new Speech & Language Therapy project which aims to find out if empowering parents by training them helps their child overcome their speech problems related to cleft palate.

This two centre study is being run by Dr. Triona Sweeney, Trinity College Dublin and Dr. Debbie Sell, Great Ormond Street Hospital. Parents are encouraged to participate in this study as this will help us find out whether this novel new approach to speech therapy for children http://www.ciprobuyonline.org with cleft palate related speech problems is effective. Four parents who have already attended the training course were extremely positive about the programme. Following the home programme they said that “you feel like you are instrumental – taking some power yourself”, and how they realised that children “need a little bit every day, a weekly appointment is not enough”.

If you want further information about the project contact your cleft unit or Triona by phone at 085 1754614 or email platslt@icloud.com.


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Moving on from Cleft team in Temple Street

  By Cleft Team News

Professor Tri­ona Sweeney began her career in the Children’s University Hospital (CUH), Temple Street, Dublin, over 35 years ago and throughout that time has made a major contribution to the advancement of knowledge in the area of cleft-related speech problems. She is an internationally recognised author of many academic papers, and most recently contributed a book chapter to ‘Cleft Palate Speech’ along with other prominent figures in the field of cleft. Continue reading


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The Dublin Cleft Centre Conference

  By Cleft Care, Cleft Team News, Events

“Cleft Lip and Palate: The Journey of Care from Birth to Adulthood”

Venue: Hilton Dublin Hotel, cheap Charlemont Place, Dublin 2 (location map below)

The aim of the conference is to provide an overview of the journey of care of a baby born with Cleft Lip & Palate from birth to adulthood.  (Access Registration Form below)

This conference is suitable for Neonatologists, Paediatricians, Obstetricians,Surgical Trainees, Speech & Language Therapists, Orthodontists, Dentists, Nurses, P.H.N. & Midwives, General Practitioners and other interested Health Care Professionals.

Continue reading


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New Co-ordinator Appointed (September 2005)

  By Cleft Team News

We are delighted to let you know that Laura Duggan has recently been appointed as Cleft Co-Ordinator succeeding from Claire Kelly. She will operate between St. James’s Hospital and Our Ladies Hospital for Sick Children Crumlin, Dublin.

Laura comes into the team with a General Paediatric Nursing and a Managerial background. Having most recently worked as a Ward Manager in The Children’s University Hospital, Temple Street, Laura has a considerable amount of experience in Paediatric/Family Centered Care. We wish Laura well and look forward to working with her in her new role.


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