Stickler Syndrome is a RARE condition associated with Cleft particularly Pierre Robin. It affects areas of the body where there is cartilage for example joints. There are only 12 diagnosed cases in Ireland.
Whilst there is a newly formed support group for Stickler Syndrome ethically they cannot be given families’ names and so making contact is difficult. If you are one of those families and would like to join the group please contact Theresa Corrigan 042 9665548.
See www.stickler.org.uk for more information on Stickler Syndrome.
