The US Food and Drug Administration reported in Sept’06 that preliminary information from the North American Antiepileptic Drug Pregnancy Registry suggested that babies exposed to Lamictal during the first three months of pregnancy may have a higher chance of being born with a cleft lip or cleft palate.
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According to today’s Sunday Independent (May 27, 2007), Ireland will become the first country in Europe to implement mandatory folic acid food fortification next year.
“The move will result in a 24 per cent drop in the number of babies born with neural tube defects such as spina bifida and anencephaly, doctors say. Ireland has one of the highest rates of neural tube defects in Europe with between 49 and 93 affected babies born here every year. Folic acid is a vitamin that, when taken prior to a woman becoming pregnant, can help prevent neural tube defects in babies.” (Quote)
A recently (May 2007) published ((SEE Norwegian study on folic acid supplements and risk of facial clefts)) Norwegian study on folic acid supplements and risk of facial clefts concluded that folic acid supplements during early pregnancy seem to reduce the risk of isolated cleft lip (with or without cleft palate) by about a third.
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As and from May 2007, cleft.ie has started rolling out a ‘Listen to this Page‘ service, and this feature will be extended to most pages and select posts over time.
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The Craniofacial Society of Great Britain and Ireland annual conference took place in Dublin this week, and there were a multitude of interesting and insiteful presentations on all aspects of cleft and cleft treatment. We hope in the near future to make available summaries of some of the presentations here.
Mr. Earley at the end of the conference handed over the chain of office as President to Bill Shaw, Professor of Orthodontics and Dentofacial Development, Manchester University Dental Hospital.
Right: Mr. Michael Earley, outgoing President, Gareth Davies, Chief Executive, CLAPA UK, Kirsi Yli-Kaitala, ex-CLAPA UK team administrator, Eddie Byrne, committee member and past President, CLAPAI. (click to enlarge)
The Craniofacial Society of Great Britain and Ireland this year holds its annual conference in Killiney, buy Co. Dublin. Mr. Michael Earley, Consultant Plastic Surgeon, Temple Street, is the President of the Society for this year, and we wish him well in his role.
The conference takes place from the 18-20 April. CLAPAI will be present at the conference where we will have a stand and attend some of the many lectures that will be given.
Please note that coinciding with the revamp of our website, tadalafil our Discussion Forums have been moved to a new web location also, with an ever so slightly changed look, and can now be accessed at:
Do drop into the forums and talk to others, share your experiences and learn from the experiences of others. The forums are designed for you, and we know they prove a valuable resource for many, so do participate if you can.
This, our third Family Day, promises to be our biggest and best yet! Following on the success of last year’s event, we will be back in the Curragh Camp on Saturday 16th June .
Note: Deadline for bookings – Friday 8th June.
With the help of the army we will have a bouncing castle, slide, football, army exhibition, swimming, barbeque, junior gym obstacle course, arts & crafts and face painting. And musical entertainment!
This year we are introducing Teenage Trek, a chance for teenagers to break away from grown ups and little ones and enjoy some time trekking in the Curragh (max away time one hour, so don’t be too worried about fitness!).
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[28 March 2007] Welcome to the new look website of the Cleft Lip and Palate Association of Ireland. We hope you find it both helpful and informative. Do let us know if there is anything we can do to make it better serve your needs.
Please note also that our Discussion Forums are now available at a new URL – SEE http://forum.cleft.ie/
New Features:
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Some of you will know that there currently is in an extensive study of the causes of cleft and how clefts can be prevented from occurring. The HRB are one of a number of organisations involved in this ‘trans-Atlantic’ research. Many of you will remember the two-year drive that the HRB conducted to collected samples from Ireland. Over 1,000 families participated by filling in questionnaires and providing ‘buccal’ samples.
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In our last Newsletter we mentioned a fund raising drive that has been launched to get new equipment for planning treatment. The piece we are fundraising for is a new computerised 3 Dimensional Capture systems.
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