[28 March 2007] Welcome to the new look website of the Cleft Lip and Palate Association of Ireland. We hope you find it both helpful and informative. Do let us know if there is anything we can do to make it better serve your needs.
Please note also that our Discussion Forums are now available at a new URL – SEE http://forum.cleft.ie/
New Features:
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Some of you will know that there currently is in an extensive study of the causes of cleft and how clefts can be prevented from occurring. The HRB are one of a number of organisations involved in this ‘trans-Atlantic’ research. Many of you will remember the two-year drive that the HRB conducted to collected samples from Ireland. Over 1,000 families participated by filling in questionnaires and providing ‘buccal’ samples.
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In our last Newsletter we mentioned a fund raising drive that has been launched to get new equipment for planning treatment. The piece we are fundraising for is a new computerised 3 Dimensional Capture systems.
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Many thanks to Tony & Mary Kelly who organised a gate collection at their local GAA ground – many thanks to the supporters at Naomh Teagain. We would also like to thank the extended Kearney family who swapped Christmas gifts for CLAPAI donations … what a cool idea! Thanks also to Eddie, hospital Alice, John, Paula, Noel and the Carrig Ladies Club who all made much welcomed donations recently.
The financial mainstay of the organisation is due to take place on Bank Holiday Monday, 4th June 2007. It is of course the 2007 FLORA WOMEN’S MINI MARATHON. The Association is, as usual, looking for participants to raise funds.
Sponsorship cards and t-shirts can be arranged by contacting Anne Gilsenan at 087 1319803 or annegilsenan@cleft.ie. In the meantime we would like to let you know that the first entry form will be in the Evening Herald on Thursday 1st March 2007 and the closing Date is Tuesday 24th April 2007 or when maximum number of entries is reached. Happy training people!
Venue: Croke Park Conference Centre, Dublin.
22q is a very rare condition that amongst other symptoms involves cleft palate. On Saturday 26th May a conference is being organised for people that are ‘living with 22q”. It is an opportunity to meet other families, healthcare professionals and experts and admission is free.
The conference is being held in Croke Park Conference Centre. Creche facilities will be provided. Please contact Anne Lawler (01) 8338390 or email grainne.mooney@o2.ie for more details.
The Spring 2007 Newlsetter is now available to download
PLUS
Cleft Connect, the Newsletter of the European Network of Cleft Support Groups is now available for download.
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Venue: NEW BANKERS CLUB, Stephen Street Upper, Dublin 8
Parent’s evenings are informal occasions that allow parents of children born with cleft to meet and share experiences. It can be encouraging for parents to meet with other parents who have children of the same age or a little older. It is also good to share tips with parents who have younger children. The evening is not geared for children as such, but newborns are more than welcome – we know that getting babysitters in the early days is not always possible. We look forward to seeing you over a cup of tea!
All you have to do is turn up on Wednesday, 9th May, 8pm!
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Venue: NEW BANKERS CLUB, Stephen Street Upper, Dublin 8
Parent’s evenings are informal occasions that allow parents of children born with cleft to meet and share experiences. It can be encouraging for parents to meet with other parents who have children of the same age or a little older. It is also good to share tips with parents who have younger children. The evening is not geared for children as such, but newborns are more than welcome – we know that getting babysitters in the early days is not always possible. We look forward to seeing you over a cup of tea!
All you have to do is turn up on Wednesday 7th March 2007 at 8pm!
Bankers’ Club is a new building located at the junction of Golden Lane, Longford Street and Stephen Street Upper.
Submission to Rawlinson Kelly & Whittlestone Ltd (RKW) and the Joint HSE/DoHC Transition Group for the New Children’s Hospital
From the Cleft Lip & Palate Association of Ireland
This submission to Rawlinson Kelly & Whittlestone Ltd (RKW) and the Joint HSE/DoHC Transition Group for the New Children’s Hospital has been made as a result of an invitation extended to charities present at a meeting of the HSE & RKW. The meeting was organised and facilitated by Children in Hospital Ireland and involved a number of children’s health voluntary groups.
Date: 27th February 2007
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