Annual General Meeting and Information Evening, 28th Nov 2006

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Venue: Graduate Centre, William Stokes Building, St. James’s Hospital, Dublin 8.
Directions

Speakers:
Ms Anne McGillivary & Ms Laura Duggan
Cleft Co-Ordinators for Children’s University Hospital, Temple Street & Our Lady’s Hospital for Sick Children, Crumlin, respectively.
and
Mr. Patrick Sheahan, Ear Nose & Throat Consultant with a special interest in Cleft, Children’s University Hospital, Temple Street & St. James’s Hospital.

Tea & Coffee available from 7:30pm
ALL ARE WELCOME

Remember, Tuesday 28th November, 8.00pm!

Craniofacial Society News

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We would like to congratulate Mr. Michael Earley on his presidency of the Craniofacial Society of Great Britain & Ireland for 2007. The Society will be holding its 2007 conference in Dublin in April. The event will take place over three days and will feature leaders in all aspects of craniofacial care including treatment of cleft conditions. We trust all concerned will enjoy a great conference (& a great venue!).

New Graduate Nursing Programme

  By Hospital News

For some years CLAPAI has been invited by Our Ladies Hospital for Sick Children and Children’s University Hospital to lecture as part of their postgraduate paediatric nursing programmes. The talks given have concentrated on a parent’s experience – medical, emotional, practical. A number of volunteers have shared their experiences – each person with a different story. The feedback from students has always been positive.

This year, a new combined programme comes into affect. The programme is being run from UCD. The Association are delighted that CLAPAI is very much a part of the programme going forward even though the course duration has been reduced from 18months to 12 months. The first lecture of the new programme will be given in January.

Fund Raising – Cake Sale

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Our esteemed treasurer took a break this year from her usual mini-marathon fund raising efforts to generate funds from a marathon cake sale instead. Fruitcakes, pilule cream cakes, viagra 60mg scones, medications biscuits, tarts and fabulous brown bread were part of a fantastic spread. The Saturday http://onlinepharmacies247.com sale raised an incredible €1,300 for the Association.
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Fund Raising – Mini Marathon

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Many thanks to our volunteers who have once again put in a tremendous effort to raise funds for the Association. The mini-marathon has become the financial mainstay of our Association. This year we had 7 runners on the field, prostate all sporting http://www.buycheap-pillsonline.com/topamax.html Association T-Shirts and all carrying full Association Sponsorship cards. Many thanks to Bridget Jones, Gillian McMahon, Patricia Clifford, Majella Myler, Julie Young, Pauline Mason & Amalia Murray.This year a combined amount of €1,600 was raised. Brilliant!

Family Day, 10th June 2006 – Report

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With 39 families in attendance (approx. 80 children and 70 adults), our second ever family day proved a great success. In beautiful sunshine and high temperatures, a great day was had by children and adults alike, with plenty of activities, including swimming, obstacle course, face painting, bouncing castle, t-shirt painting, soccer, military display, and a wonderful barbeque. Many thanks to the Army for being marvellous hosts, and for allowing us the use of their wonderful facilities. Praise must also go to the committee members who put in a huge effort in organising the day and making sure it was a roaring success. And thanks also to everyone who helped out on the day. People were brilliant! Most of all, a big thanks to all the families who attended, and particularly to the children who we know had a wonderful time.

Many thanks to the Army and the Curragh Military Camp for hosting this year’s Activity Day.

See photos of the day!

Family Day – Saturday, 10th June 2006

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Location: Defence Forces Training Centre, Curragh Camp, Co. Kildare

Following our inaugural family activity day with the Arklow Sea Scouts in 2004, the Association is holding a family day on the 10th June thanks to the Defence Forces.

For those of you who attended our first Activity Day held in Arklow in June 2004, you will remember the fun that was had by all involved, and how the kids and teenagers went home at the end of an activity and fun-packed day with many fond memories and not a little tired from their exertions!

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Genetic Counselling?

  By Cleft Care

In the words of Sally Ann Lynch “genetic counselling” is a most misinterpreted concept! Way back when, counselling meant advice and it is in this context that it is still used today when describing genetic services. The service is most certainly not “touchy feely”, although all concerned are very pleasant! The service is not one of telling people what to do either nor is it about finding fault. So what is the service about?
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Orthodontics – Presentation

  By Cleft Care

At our Information Evening on the 22 Novmber, Mr. McKiernan gave an excellent presentation on Orthodontics for cleft including treatments available and their associated timelines.

Orthodontic treatment breaks down into five stages. Importantly, each individual will have a unique treatment. For example pre surgical orthopaedics is only suited to a small number babies. Similarly not all children will need a bone graft and of those who do not all will need work beforehand. The stages are …
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Information Evening (Nov’05) – Report

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Our Information Evening (22nd November) was attended by some 34 people, and if success can be gauged by the number of questions emanating from the audience, then this evening was a resounding success. Whether the topic was orthodontics or genetics, the audience displayed great interest in the subject matter and were very appreciative of the speakers’ contributions.
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