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Well Done Rathangan Runners!

  By Events - Reports, Fundraising

Rathangan Runners

The “Rathangan Runners” who participated in the 2012 Women’s Mini Marathon in order to raise much needed funds on behalf of the Association. Many thanks to Anne O’Brien and her fellow runners (including her son Joe, and seen here in front) for their unending support. (click image to see a larger version.)

Let us also add a big congratulations to Michael Sutton who recently completed the Liverpool Tunnel run with all sponsorship going to our Association. Well done Michael and thank you!!!

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Family Day 2012 – Saturday 16th June

  By Events

Location: Kippure Estate, Wicklow, near Blessington (20 mins from M50/Tallaght junction).

Our 8th Family Day promises to be another action-packed occasion. Kippure Estate Adventure will be running activities for all ages. For children there are bouncy castles, bouncy slide, face painting, balloon animals and a play area. For older children and adventurous ‘grown ups’ there is archery, climbing with helmets and harnesses, abseiling and a treasure hunt. In an estate of 240 acres, there are plenty of walks too.

We must have final numbers by Wednesday 6th June. Forward family details to info@cleft.ie (family name, address, contact number / email, names of those attending, children’s ages, special needs, transport help).Alternatively, download booking form as follows:

[download id=”49″]
[download id=”50″]

Registration from 9.30 to 10.00am. There is a tuck shop on site selling tea and coffee. As before, bring your own picnic.

We are asking for a donation of €20 per family to help cover costs (payable on the day). We are also looking for prizes for our raffle.

Please pass on the details to families you know who may not be on our mailing list. Georgina

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Parent Information Pack

  By Other News

If you would like one of our Parent Information Packs please contact Sinéad Ní Allúin at 086 8438474 or email nialluin@cleft.ie

Information Pack

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Spring 2012 Newsletter Available!

  By Newsletters

The Spring 2012 Newsletter is now available and can be downloaded below.

Included in this issue:- Anniversary Concert – How it all began – St. James’s New Challenge – March is Cake Sale Month! – Fundraising.

[download id=”47″]

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Christmas Cards – Place Your Order Now!

  By Fundraising

Christmas cards

10 Euro per pack of 10 cards (includes postage), vialis 40mg
or
20 Euro per pack of 25 cards (includes postage).

These striking cards not only help raise funds for CLAPAI but also promote awareness of Cleft Lip and Palate.

Order enquiries: email info@cleft.ie or phone 087 1319803

Payment can be made by cheque, symptoms bank draft or postal order (payable to “Cleft Lip and Palate Association of Ireland”) and sent to:
Cleft Lip and Palate Association of Ireland.
C/o 36 Woodlands Avenue,
Dun Laoghaire,
County Dublin,
Ireland

Order now to ensure prompt delivery!

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30th Anniversary Celebration Concert

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland is celebrating its 30th anniversary in 2012!

To celebrate, cialis we are having a special concert featuring;

The Garda Band, order

James Nelsonwith Special Guest, cialis James Nelson of the Celtic Tenors.

Venue: St. Mary’s Catholic Church, Maynooth, Co. Kildare.
Thursday 16th February 2012 at 8:00pm (Doors open 7:30pm).
Please ensure you arrive in plenty of time to be seated.

Tickets: €15 each.

Contact us at e-mail info@cleft.ie, or telephone 087 1319803.

Tickets also on sale locally in Maynooth Bookshop, 68 Main Street, Maynooth. Many thanks to Ursula Byrne and the team.

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Information Evening & AGM

  By Events

Venue: Merrion Room, Red Cow Moran Hotel, Naas Road, Dublin 22. (see location map below).

Doors open from 7:30pm. Admission is free, all are welcome.

Topic: “A to Z of Cleft Surgery”.
We are delighted to have two eminent speakers from the Dublin Cleft Centre for this event:.

Mr David Orr, Consultant Plastic Surgeon, Our Ladies Hosptial Crumlin and Saint James’s Hospital.
Mr Gerry Kearns, Consultant Oral and Maxillofacial surgeon, Our Ladies Hospital Crumlin and Saint James’s Hospital.

With special guests Ms. Anne McGillivary and Ms. Laura Duggan, Cleft Co-Ordinators for Temple Street and Crumlin respectively

All babies born with cleft in Ireland will have either a lip and / or palate repair. Our speakers will cover these early surgeries. What happens next. Surgical options for improving speech. Surgery, in particular, bone grafting as part of the orthdontal treatment. Final surgeries for the young adult and options for older adults who may want to return for treatment. Each baby born with cleft will have their own unique treatment plan. Some may only ever have one operation, others may have more. The aim of this talk is to inform parents and other interested parties about the surgeries available, preparation, likely outcomes, how to balance surgery with other therapies. We will be looking to the floor for ideas on how to deal with soft food diet regime post surgery espically for teenagers – your input is welcome!

To help us plan numbers, please send a text or leave a message on 087 131 9803 or send an email to info@cleft.ie with your name and indicating numbers attending.

Location Map:

View Larger Map

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22q11 Annual Conference

  By Events, Other News

Venue: Red Cow Moran Hotel, Naas Road, Dublin 22.

22q is a very rare condition that amongst other symptoms involves cleft palate. This conference on Saturday 22nd October is an opportunity to meet other families, healthcare professionals and experts and admission is free.

Programme.

09:30 a.m. Dr Alex Habel, Consultant Pediatrician to the North Thames Regional Cleft Unit based at Great Ormond Street Hospital NHS Trust, London.

10:10 a.m. Dr Debbie Sell, Head of Speech and Language Therapy Dept, Great Ormond Street Hospital for Children NHS Trust, London.

10:50 a.m. Prof Kieran Murphy, Royal College of Surgeons in Ireland, Structural & Functional Neuroimaging Research Update.

11:10 a.m. Dr Erik O’Hanlon, Royal College of Surgeons in Ireland & Anne Lawlor, 22q11 Ireland on Research Findings – Making Sense of Behaviour.

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Family Day 2011 Photos!

  By Events - Reports


Family Day 2011 Group PhotoWhat a great day we had! Despite a heavy early morning shower of rain, symptoms the day brightened up in every sense of the word, with plenty of sunshine, fun, food, chat, and revelry.  As our Photo Gallery of the day will testify.

Right: Group Photo – Clock to view larger image.

The Association would like to extend a big thanks to Newbridge Scouts for their wonderful help on the day, and Coillte for the use of the beautiful Donadea Forest Park. But most of all we would like to thank all those who came on the day, children, teens, parents, grandparents, friends and trojan helpers, all who helped make it such a great success. Thanks a mill!

View the Photo Gallery.

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Feeding Videos

  By Good to Know

There are some very good videos on feeding your baby available from the American Cleft Palate Foundation, sildenafil and they have also very kindly sent us several DVDs.

The videos are evenly paced. They cover various options for feeding in bite size pieces. The videos that will be of particular interest to Irish parents are those on the Enfamil nurser from Mead Johnson (which has the same mechanism as the MAM), advice and the Haberman Feeder (more recently referred to as Special Needs feeder).

While the videos are helpful, abortion parents should contact their Cleft co-ordinator or team Speech and Language Therapist if feeding is problematic. It should also be said there are very specific cases such as Pierre Robin that will require direct consultation with the team.