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Annual General Meeting and Information Evening

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland is holding its Annual General Meeting and an Information Evening on Thursday, 15th April, 2010, at 8pm. Doors open from 7:15pm.

Venue: The Louis Fitzgerald Hotel (near Joel’s), Newland’s Cross, Naas Road, Dublin 22. (Location Map below).

The Information Evening theme is “SPEECH AND HEARING“.

Following our successful event last year, ‘Dental Care All the Way’, this year we are concentrating on Speech and Hearing. We will be looking at each area separately and where they overlap. We are delighted to have three excellent speakers for the event.

  • Nicole Prenderville, Senior Speech and Language Therapist, Our Lady’s Children’s Hospital,  Crumlin.
  • Rob Wormald, Senior Ear Nose and Throat Registrar, Children’s University Hospital, Temple Street.
  • Julianne Gillen, Community Resource and Access Officer, DeafHear.ie

The information evening is aimed at parents, but will also be of interest to adults born with cleft or medical personnel working in this area.  Carers or close relations are also welcome.  While admission is free, we would appreciate an email, text or call in advance, so that we have an idea of likely numbers attending.

Location Map:
View Louis Fitzgerald Hotel in a larger map

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Urgently Required – New Committee Members

  By CLAPAI News

We urgently need two new committee members to cover for a vacancy and for new projects that we want to undertake.

The committee meets 10 times a year in the Bankers Club in Dublin 2.  Meetings last from 8:15pm to 10:30pm approximately.  We divide work to suit our respective talents and interests.  We always try to maintain a balance in keeping work manageable for volunteers and doing all the things we want to do to make life better for families.  If you can help in some way please phone 087 131 9803 or email info@cleft.ie

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CLP Resource Pack for Speech and Language Therapists

  By Other News

The “Cleft Lip and Palate and Palatal Anomalies SIG” are a Special Interest Group that have recently produced a resource pack for Speech and Language Therapists working with children with Cleft Lip and Palate in different clinical settings.

This resource contains very specific information ranging from the care pathway to therapy that can be conducted with children from earliest stage of babble stimulation right through to specific techniques to articulation therapy as well as instrumental assessment techniques that are available.

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Information Leaflets Update

  By CLAPAI News

We have recently secured funding from the Lotto that will part pay for the reprint of our 10 leaflet series.  We are reviewing the series during the month of October and would appreciate feedback from you.

Send your comments to info@cleft.ie.

We are also working on producing supplemental leaflet that will address specific procedures that occur later in treatment e.g Braces, viagra dosage Bone Graft. This will be a slower process as we will need to work on content, cost ensure quality and accuracy with our medical colleagues and of course go to print.  If you would be interested in contributing to this process please contact us by e-mail.

Many thanks,
Georgina Wade

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Rathangan Runners do it again!

  By Fundraising

Rathangan RunnersThe Rathangan Runners do it again! Another great fund raising event from Anne O Brien and the team. Without them and all of our mini-marathon runners we would indeed be lost.

L-R: Sharon Melia, unhealthy Natasha Gilligan, Anne O’Brien, Liz Gilligan and Trasa O`Brien.

 

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What a Day!

  By Events - Reports, Uncategorized

medicine Family Day, 13 June 2009″ src=”http://www.cleft.ie/_newsite/wp-content/uploads/2009/06/dsc_0698-300×156.jpg” alt=”Group Photo, Family Day, 13 June 2009″ width=”300″ height=”156″ />Our Family Day was such a success! And what a beautiful sunny Saturday! A great turn out, our biggest to date, and everyone had a ball. Some 48 families or more, and over 200 in attendance between adults and children.

Right: Group Photo taken in Dublin Zoo. Click image to view large size (2019px x 1051px, 790kb).

Thank you to all who came, we expect that there were many tired children on Saturday night! And even more tired adults! And thank you too to the Zoo staff and to the army for hosting and feeding us in McKee Barracks.  This is the third year that the army have been involved with out Family Day, and they have been great!

See Photos of the Big Day!

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Win €10,000 for Our Charity!

  By Fundraising

Visit www.lyonscharitygiveaway.ie and find out how to nominate our charity to win €10, recipe 000.

To enter, viagra 60mg Send 1 token from any box of Lyons tea naming the “Cleft Lip and Palate Association of Ireland” as your favourite charity, your name address and telephone number to:
Lyons Charity Promotion, PO BOX 10850, Dublin 2.

Closing date for entries is 31st August 2009.

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Study Morning on Speech and Language Difficulties – 22q11 Ireland

  By Events

Venue: The School of Nursing and Midwifery Studies, Trinity College, 24 D’Olier Street, Dublin.

22q11 Ireland22q11 Ireland invites you to a Study Morning on Speech and Language difficulties specific to 22q11.2 Deletion / VCFS / DiGeorge syndrome.

Our speakers on the day are USA VCFS experts:

Speech Pathologist and Outomes Studies Coordinator: Eileen Marrinan, M.S., M.P.H.
A true expert in the field of speech disorders associated with cleft palate in general and VCFS specifically, she has been the primary resource for guiding the treatment of speech disorders in VCFS and managing care of patients http://onlinepharmacies247.com/paxil_generic.html through the Distance Care program. She is also an expert at multiview videofluoroscopy, a state-of-the-art diagnostic procedure first developed at Upstate Medical University.

Eileen will speak on “The Nature and Treatment of Speech Disorders Associated with Velo-Cardio-Facial Syndrome”.

Doctor Sherard Tatum.
Doctor Tatum has dedicated his career to the care and research of cleft and craniofacial disorders. He is Board Certified in both Otolaryngology and Facial Plastic and Reconstructive Surgery.

Scott will speak on “Surgical Managment of Velopharyngeal Insufficiency in Velo-Cardio-Facial Syndrome”.

RSVP to: twenty.two.q@gmail.com. Telephone: 087 7412856.

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Spring 2009 Newsletter Available

  By Newsletters

Spring 2009 Issue.

Maternity Packs. – AGM and Information Meeting, order 2nd April. – Annual Family Day Out, look 13th June. – Mini-Marathon, 1st June. – Fundraising. – Dublin Maternity Hospitals Moving. – Further Adult Cleft Treatment Story by Dave Dowling. – Children’s Section.

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...or view newsletter online

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Annual Family Day, 13th June 2009

  By Events

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Update, decease 8 June: BOOKINGS NOW CLOSED, sorry!

45 families are booked for our day out at the Zoo and McKee http://www.genericpropeciabuyonline.com Barracks. If you have booked, you will have received a booking confirmation by text or email.  Only families that have pre-booked and are confirmed will be able to join the group in the Zoo and carry on over to McKee.  Details of the day are being forwarded as we post here.  If you have any queries on bookings or logistics please contact us by phone or email 087 131 9803 & info@cleft.ie.

———–

The year the CLAPAI Family Day outing has been organised to visit Dublin Zoo and McKee Barracks. It will take place on Satuday, 13th June. In Dublin Zoo we can look forward to themed guided tours, such as the “Rain Forest Tour” and the “New African Safari Tour” for both the junior and the older children in our group.

Following our visit to Dublin Zoo, we will then walk to the adjacent McKee Barracks for lunch. Following lunch the army have organised for us to visit their Equestrian Centre. We really hope you can join us on the 13th June for a great free day out and also take the opportunity to meet up and chat with other families.

(Booking Form removed, 8 Jun)